Wednesday, June 29, 2011

Cycle 6 - Back at Primarys

We are back at Primarys for cycle 6.  This is the last cycle before Cooper has surgery to remove the tumor.  Because surgery is soon they scheduled lots of tests this time along with the chemo.  Today he has had an Echo and Chest CT, tomorrow he will have an MRI and Bone Scan.  We meet with Dr. Randall who is his surgeon next week on Wednesday to set a date for surgery.  Hopefully we find out then if Cooper will have to do radiation.  The girl we met with his same cancer was told she probably wouldn't have to do radiation but after the surgery was told it is protocol and she was here for 4 weeks straight for radiation.

Cooper did well today.  His home health nurse has been accessing port and telling him she is putting a sticker on him so he isn't scared of a needle going in.  She hides the access needle and he has felt so much better about being accessed.  I tried to explain this to the nurse here at Primarys but he misunderstood and totally showed Coop the needle.  Oops!! Coop took a deep breath and they were able to access him easily.  Sweet little guy doesn't know the needle goes in every time, even with the "sticker".  His nurse is also very funny.  Coop came with the usual bad attitude and this nurse was able to get him to smile and laugh.  He has a farting machine with a little remote.  He let Cooper take when we went for tests earlier.  Picture this: I am holding Cooper in a wheelchair, he is hiding the machine and remote and we go in elevators and down long hallways with him pushing the farting button.  I tried to keep a straight face but the tech pushing our wheelchair and Cooper were both laughing.  It was pretty funny.  He has even talked to this nurse.  Cooper wanted me to run and get him chicken nuggets, I was gone for 30 minutes and the nurse and him were watching Lightning McQueen when I got back having a good time.  It has been a really good stay so far.  Right now he is sleeping, pretty tired from getting up early to come down here.  Hopefully we can have this nurse again, he is great!!

2 comments:

  1. That is so awesome about the farting machine...may have to find me one of those :)

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  2. So hoping there is no radiation in little Coop's future. Glad you had such a good experience with that special nurse. I'm sure it did your heart good to see someone be able to connect with Cooper and help lift his spirits. Good luck through all the testing and chemo treatments this week ~ we'll be thinking of you! Keep us updated...

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